37: Falling off the Bandwagon

So I have not been posting at all concerning my treatment plan or what has been going on with me because I have completely fallen off of everything.

Ever since I ended up in the hospital with excruciating abdominal pain, back pain, and reacted horribly to Hydroxychloroquine, I have just gotten out of the habit of everything and have not found it in me to get back on track.

On Friday, I went to go see a functional medicine Registered Nurse who works with a lot of Lyme patients, but who also looks at your body as a whole and checks for any underlying issues in additional to lyme disease and co-infections.

She was wonderfully empathetic and very very thorough.  I was sent for a bunch of blood and urine tests again to check my hormone levels, thyroid, Vitamin D, Adrenal levels, etc.  She also wants to explore the possibility of some digestive issues and will be sending me to a Gastroenterologist to ensure that I do not have an issue with malabsorption.

I am currently only taking the Nystatin, Azithromycin and two different probiotics (which I stopped for a few days there) because I was neglecting myself and my treatment.  I really feel quite lost and am hoping that I can get back on track soon.

I completed my blood tests and e-mailed my LLMD in the US to inquire about what my next step should be.

I have been horrible….I ate sugar….I ingested foods that I am not supposed to…I drank a glass of wine!!! I didn’t take my meds….I haven’t been drinking enough water…no detoxing….not going to bed on time….I have been stressing and overdoing way too many things and putting my health on the back burner.

I know this is all wrong and my health should come first….but I just wanted to feel like I was a normal person for a few days…and now I am suffering the consequences of my actions.

Today I am completely floppy and my limbs feel like they weigh about 1000 pounds each, brutal headache, major skin breakouts, feel like I cannot open my eyes, major neck pain, nausea galore, mood swings, bloating and inflammation, feeling internal heat and sweats, body aches…and on and on and on…..

I promised myself that I will bounce back from this so here is the plan:

  1.  My new RN is going to oversee my treatment and speak with my LLMD in the US to make sure they are both on the same page
  2. I have e-mailed my LLMD in the US to ask what my next step should be and regarding my concerns
  3. I have completed my recent blood and urine tests and will wait for results to follow up with my RN
  4. I am waiting for an appointment to the Gastroenterologist
  5. I continue to take my Nystatin/Azithromycin/probiotics
  6. I force myself to drink 2-3 litres of water a day
  7. I get adequate rest and put my health first
  8. I start activated charcoal for detox again
  9. I maintain my diet and do not ingest any more sugar, alcohol, or inflammatory foods that will make me feel worse

I feel like for a while there I was self sabotaging and I finally picked myself back up and said “you can do this” and am taking the necessary steps to make it happen.

I can’t do much else until I hear back from my LLMD in the US…so until then, I will be a good girl and drink my water, eat well, rest lots and detox.

Can you tell I have been avoiding this?  It just feels like too much sometimes and I honestly just want to avoid talking about it because it feels like it consumes my life.  BUT I want to get better…so here’s to the next step and me moving out of the denial stage of this illness.

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DETOX BATH

Why take a detox bath?  Oh so many reasons!  One of which being the fact that it eases headaches which are the plague that has followed me for the past 3.5 darn years.

Some benefits of Detox Baths:

Ease stress and relax the body

Relieve pain and muscle cramps

Help muscles and nerves function properly

Help prevent hardening of arteries and blood clots

Make insulin more effective

Relieve constipation

Eliminate toxins from the body

Everyone can benefit from a detox bath.  Especially if you suffer from Chronic Illness or Lyme Disease, detox baths can be great, BUT please go slow and check with your doctor before trying anything like this.  Detox baths have been known to cause a herx.  So please proceed with caution!!!

HERE IS ONE OF THE DETOX BATHS THAT I DO:

1 c 35% food grade *Hydrogen Peroxide 
1 c Epsom Salts
1 c Baking Soda
Tri-Salts (for drinking before and after the bath)
  1. Start to draw your bath, not TOO hot, but enough so that you will break a sweat.
  2. Drink 1 tsp tri salts in 2 cups of water before you get in the bath.  
  3. Pour yourself a large glass of water to sip while in the tub.  Also prep another glass of water with tri salts as above to drink after the bath.
  4. Add Baking Soda, *H2O2 and Epsom salts to your bath, allow to fill up all the way, and then swish around to make sure everything has dissolved.  (You want to be careful with the 35% *H2O2, as it can burn your skin if not diluted properly!)
  5. Get in the tub and immerse as much of your body as possible under water.  Be careful not to touch face or eyes with the water because of the *H2O2.  Set a timer for 10 minutes.
  6. If you are ok after 10 minutes, set the timer for another 10.
  7. Drain bath water and don’t get up until the water has completely drained.  Use this time to drink another 1 tsp tri salts in 2 cups of water.
  8. Once the bath has drained, slowly and carefully stand up.  Rinse off with soap and cool water.  You want to wash away all those toxins your body just worked so hard to sweat out.
  9. Relax for 15 minutes or take a short nap if you need to following your detox bath.  Be sure to continue to stay well hydrated!!!!

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Lavender Rose Lemonade

This link for Lavender Lemonade was shared with me by Danielle.  This is supposed to aid in headache relief as well as anxiety.


I decided to put my own little spin on it and add some rose buds as well, which made it pink rather than purple, but still pretty, tart and delightful to the senses.


Ingredients I used:

6 c water

4-5 tbsp powdered stevia (or 1 c honey)

1 tbsp dried culinary lavender

1 tbsp dried culinary rosebuds

6 lemons, juiced

My Little Helper 🙂

1. Bring 3 cups of water to a boil.  Remove from heat.

2. Add lavender, rose buds, and stevia or honey.  Allow to steep, covered for about 20 minutes.


3.  Strain the liquid into a jug and add the lemon juice and additional 3 cups of water.

4. Allow to cool completely in fridge.  And enjoy cold.

Note:  you can add more stevia or honey to taste once chilled.

I was disappointed at first because there was not much colour. BUT wait till you add the lemons!!! It brightens everything up!

Next time I will try with only lavender just to see the pretty colour!

I am enjoying my first glass… We will see if it helps the headache! If not, I would make it again just for the taste.

Thanks for sharing Danielle!

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DAY 10 Today is a Good Day!

Today I woke up on the right side of the bed so to speak.  I changed the time of taking my activated charcoal and clay powders to 6am instead of the middle of the night and it works much better.  I went back to sleep after this and allowed myself some extra rest for repair this morning.  I woke up feeling more refreshed, although with a banging headache.

My fave pillow :)

My fave pillow 🙂

I brushed my tongue, oil pulled with coconut oil for 20 minutes and brushed my teeth with all natural clay toothpaste.  I am slowly sort of getting the hang of this.

There is just SO MUCH that can be done and I just need time to fall into a routine that works for me.  I am sure it different for everyone, as we all have individual diagnoses and symptoms that we are dealing with.

Back to my earlier post Attempt at Fighting a Triple Threat  It actually worked!!!  I took my meds and proceeded to sit very very still with my heating pad, my ginger tea, my peppermint essential oil products for headache and my feet immersed in a lavender epsom salt bath.

The second that I had any inkling of nausea, I dried my feet off and got my baking soda water from the fridge and drank the entire thing.  I honestly got through this really easily today…whereas almost every other time I have literally cried because it has been so bad.  I will be doing this again tonight when I take my meds!!

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My Side Effects Arsenal of products

I just got a knock on my door from UPS…hmmm…I forgot I ordered something?

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YES, I ordered this beauty from my RBC rewards points so it was “free” in a way.  LOVEEEEE her!!!  My new baby, can’t wait to use her!

So as you can see, today was a pretty great day, I cherish these days!!!

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More good days to come please!

🙂

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DAY 10 Headache Relief Kit Review

Yesterday my beautiful sister (and best friend) surprised me with a wonderful gift from a new store called Saje (100% natural products)  Here is a link to their website:  Saje.

Totally unexpected and exactly what I have been needing!!!  I love everything I got!  Thanks Kiki ❤ 🙂

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Here is a look at all my goodies that I received!!!

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First can I say how beautiful all of the packaging is?  Right down to the burlap bag that it comes in!  I love the simplicity of it.  But at the same time clean and modern looking…already makes me like the products.

The Headache Relief Kit comes in a perfect little pouch with a zipper on the top.  Easy storage and great for taking on the go.

All of the products smell incredible and natural.  Almost like breathing in the scent of a crisp cold winter day surrounded by nature and flowers.  Ahhhhh. 🙂

The kit contains a little booklet that tells you exactly how to use each of the 3 products it contains:

1.  Peppermint Halo roll on is a dual sided blend of essential oils.  One side is for rolling around that hair line and the other is a handy dropper in case you want to mix the oil with a carrier oil for localized use.  It provides an intense cooling and almost numbing feeling to the applied areas and honestly lasts for hours!  Truly takes the edge off!

Medicinal ingredients: essential oils of peppermint, eucalyptus, cajeput, rosemary, lavender & vetiver.

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2.  Peppermint Halo Wand is also the best thing ever.  It is a wand that you press into localized spots all over your head (even through your hair) to get the same sort of relief as the roll on,  without getting it all over your hair.

Medicinal ingredients: essential oils of peppermint, eucalyptus, cajeput, rosemary, lavender & vetiver.

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3.  Stress Release Tension Reducing Mist smells amazing as well.  It is meant to mist above your head 3-5 times while you close your eyes and deeply breathe in the aromas it releases.  It is amazing what scent can do.

Medicinal ingredients: essential oils of lavender, orange, roman chamomile, vetiver, geranium, clary sage & myrtle.

Non-medicinal ingredients: purified water.

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I have had ZERO headache relief until now.  Mind you it does not completely take my pain away, but greatly reduces the severity of it.  I will continue to use this daily.

I used the Lavender Balancing Bath Salt Soak for my detox foot bath today as it contains sodium chloride (sea salt), magnesium sulfate (epsom salt), zea mays (corn) starch, sodium bicarbonate (baking soda); essential oil of lavandula angustifolia (lavender).  Pretty much everything I need for the perfect soak without the effort of creating it myself.

The scent of lavender was extremely calming and relaxing.

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Finally, the Stress Release Tension Release Diffuser Blend of essential oils I used in my humidifier in the bedroom.  It is super calming and relaxing and helped me fall asleep quite easily.

Medicinal ingredients: lavandula angustifolia (lavender), citrus sinensis (orange), anthemis nobilis (roman chamomile), salvia sclarea (clary sage), pelargonium gravelolens (geranium), myrtus communis (myrtle) vetiveria zizanoides (vetiver).

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Needless to say, I love love love everything and it really helps me when I am feeling quite unwell.  I can’t wait to explore more of their products.  I love that everything is all natural and will not add to the toxic load on my body.

I have been wanting to do a lot more reading about the medicinal and other uses of essential oils for a long time now, I just haven’t gotten around to it.  This was the perfect little step in the right direction!

Kudos to my sister for discovering this amazing brand!!!

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