DAY 53 of Treatment, sort of

Hello People,

If you have been following me, then I am sure you know by now that the start to my treatment has been one bumpy ass road.  It was derailed initially by excruciating stomach pain, followed by test results showing that I had some serious stomach bacteria lurking in my body.

This bacteria could have been causing malabsorption of anything and everything that I have been putting in my body (I kinda wish I took advantage and ate some junk haha), not to mention a ton of other crappy symptoms.  On top of the Lyme and Co-Infections. FUN TIMES…NOT!

Anyways, I have officially finished my 7 days of the super strong antibiotic duo as of yesterday.

Today I gradually get back to my Lyme treatment.  I just popped my first dose of Nystatin, Doxycycline, and Azithromycin.  The headache and the nausea are creeping up on me a little bit, but (fingers crossed) things seem to be going ok…

I still feel like a piece of crap.  Same symptoms as per usual.  Headache exhaustion, nausea, body aches etc etc etc.  Recently I have been having nightmares every night and have this unjustified feeling of fear before falling asleep.  Weird.

Anyways…back on track…although I guess I never really was off track…just took  a wrong turn.

OH, one more thing.  We finally finally were able to get our brand spankin new big leather baby into the condo!!!  With the power of three strong men (one being my boyfriend) and a lot of sweat, these guys lugged it through the stairwell.

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I am SOOOOOO happy.  This thing is amazing.  It is huge and super comfy.  I can’t wait to curl up with my baby over the long weekend 🙂 🙂 🙂

(And please don’t look at the cluttery mess in the background..haha)

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DAY 45 (I think)

Sometimes I really get sick of writing about my treatment, hence why I don’t do it TOO often these days.  It just feels like every time I turn around there is something new to deal with.

Today I had my follow up with my wonderful Nurse who is overseeing my treatment.  My blood work came back and guess what I have?  A bacterial infection affecting the lining of my stomach that could possible cause me an ulcer if not treated.  GREAT news isn’t it?

Anyways,  that means I need THREE MORE antibiotics taken together along with everything else I have been taking to eradicate this.  At least it is only for 1 week!!!

Although I am sick of feeling like crap and feeling like I always have some sort of new health issue popping up, I am ecstatic about the fact that I have such a great team caring for me and that I finally have some answers.  This could be causing me a lot of my nausea/stomach pain.  Oh the joys!

What else?  I feel like crap today and have been having some serious skin issues out of nowhere.  I have a hive like rash and also very puffy around my mouth and my eyes….could be some sort of allergic reaction….but to what?

That is exactly why my Nurse is sending me to get some up to date food sensitivity testing as well as allergy testing.  I am honestly hoping they find something so I don’t have to deal with this swelling.  I have enough on my plate already!!

Anyways, I think that is all for now.  Nausea has somewhat subsided as I have been using Syntrion Sygest oral spray 3x per day since the 20th (about 6 days now).  I think it helps.  That and taking DGL (2 chewable tablets) 20 minutes before I take my meds.  Here are some pictures of what the Sygest looks like:

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DAY 40

I heard back from my LLMD (I had e-mailed her to inquire about when I should start adding in my next meds) and she told me that I should be adding Doxycycline back in (gradually) starting with 1 pill twice per day, working my way up to the full dose of 2 pills twice per day eventually.

Was that a run on sentence?  I think it may have been but my brain is too tired to go back and read it.

Anyways, my short term memory is seriously lacking these days.  It is so weird!  I have always had such a great memory but lately I just feel like I am so forgetful!

I started the Doxy today and it sucked.  I feel like I need to slur my words if I even have the energy to speak and my body feels so floppy and heavy.  My neck and my back kill and my nausea is kicked up  notch with this lovely med.  (I do remember that I should not lay down for 40? 45 minutes? after taking Doxy)

What else do I feel?  Ummm I don’t know…I already can’t remember what I mentioned and I feel like I will repeat myself!  Tired?  Exhausted?  Headache from hell? Chest pain?  Shortness of breath from walking one step?

This all sounds horrible when I say it “out loud” and it is…but sometimes it really doesn’t feel like it is my reality.  I don’t think it ever will…until I am better.  I just feel like I am in a surreal bubble of symptoms consuming me and that none of this is actually happening.  I guess it is.

That’s all about this for now.

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